Fundamental tenant: All people dealing with health challenges deserve outcome measures that are meaningful to their lives and accurately capture their experiences.
Who We Are
We are experts in qualitative and quantitative methods who conduct collaborative projects to develop, evaluate, modify, and interpret patient-centered outcome measures across a variety of fields and settings.
Fundamental tenant: People and their families are the best source of data on how they are feeling and functioning, and how novel treatments are impacting their daily lives.
What We Do
We design practical and rigorous studies that provide empirical evidence to support the quality of a measure within a specific use-case. These studies can include:
- Concept elicitation
- Cognitive debriefing
- Quantitative psychometric evaluation
- Longitudinal or mixed method explorations of meaningful change
We also
- Lead de novo measurement development projects when existing measures do not exist or are inappropriate.
- Leverage modern validity theory and argument-based approaches to document bespoke measurement strategies for specific settings, including clinical trials.
- Foster collaborative engagement in patient-centered measurement development.
- Improve the efficiency and quality of measurement science, especially when traditional methods and measures are inappropriate or unfeasible.
Fundamental tenant: If clinicians and researchers have access to high quality tools that accurately reflect patient experiences and values, they will use them to drive innovation, conduct patient-centered clinical trials, and to improve meaningful aspects of health.
Principles:
- We align our methods with best practices across fields and disciplines to ensure well-informed decisions and recommendations.
- We utilize flexible, collaborative methods to advance measurement knowledge for the communities we work with and ensure their experiences are central to the process.
- We disseminate results to the widest possible audience and share data back with the communities who participate in our work.
- We prioritize creativity and humility during every facet of our processes, understanding that the best measurement work is multidisciplinary by design and must include partners with lived experience.
Have a question or a project? Reach out to us here.